The Day Lew Died

The Day Lew Died

The Day Lew Died: February 4, 1998, 5:30 p.m. “Your son, Lew, is very seriously ill.  We need for you to come to the hospital.”  It is a female doctor at Kosair Children’s Hospital in Louisville.  We are at home in Lexington, 85 miles away. “On a typical day we could...
Whole

Whole

I said he was not whole But I wonder what I meant. He cannot walk or talk or perform any life skill unassisted, But he can giggle and cry and flirt; He expresses – and attracts – love. His body and mind, though constrained, “Successfully shelter his human soul And...
Homage to Sheila

Homage to Sheila

Sheila was an aide at the Home of the Innocents. She was working that first day when we took Lew from the respite care home to HOTI.  That day was a fog for me.  On that day Sheila was just one of a cloud of concerned, welcoming faces we encountered.  Over the months...
His Gifts

His Gifts

I have a first-born son Who is severely disabled But he brings great gifts to me. He brings to my life Sweetness. He looks at me. He fully accepts me as I am. He knows what love is And because of him I do, too. He brings to my life Focus. He points my life in new...