I Want: A Poem Prompt

I Want: A Poem Prompt

I WANT I WANT I WANT I SEEM TO BE BUT REALLY I AM OH, HOW I WANT………….!! This week, in July of 2009, I found this poem prompt among my files. I had filled it in at a grief support group in February of 2003 – five years after Lew’s death. I had even prepared it for the...
The Poem I Said I Would Never Write

The Poem I Said I Would Never Write

Every mother of a child who is disabled has at least one poem in her about her child, about the smile, the radiance, the beauty, the joy, the gifts, the focus, the new friends, the new purpose. And every mother of a child who is disabled has seen them all: they get...
First day at The Home of The Innocents

First day at The Home of The Innocents

It was the day we took Lew to the Home of the Innocents to stay.  It was the worst day of my life — but not for the reasons I expected it to be. Everything went well that morning.  We knew we had to be ready to leave when Judson got on the school bus at 8:00...
The Best (and worst) Social Worker

The Best (and worst) Social Worker

“THAT’S EASY FOR YOU TO SAY! IT ISN’T YOUR CHILD HAVING UNCONTROLLABLE SEIZURES ON YOUR LIVINGROOM FLOOR!!” My usually quiet voice blasted Lew’s pediatric neurologist.  A stunned silence followed on the end of phone line.  But he had a plan.  He...
Enough

Enough

I have a son who has severe physical and mental disabilities and whose life is worth living. It is worth enriching and cherishing. Someone asked me: “When do you know when you have done enough?” I wonder: Would he ask the same question about his own child? He implied,...