The Given Companion

The Given Companion

The Given Companion “How do you expect to get to the end of your own journey if you take the road to another man’s city?” Thomas Merton said. I imagine that he also asked: “And how will you build your home there if you reject the given companions who come to you with...
Whole

Whole

I said he was not whole But I wonder what I meant. He cannot walk or talk or perform any life skill unassisted, But he can giggle and cry and flirt; He expresses – and attracts – love. His body and mind, though constrained, “Successfully shelter his human soul And...
His Gifts

His Gifts

I have a first-born son Who is severely disabled But he brings great gifts to me. He brings to my life Sweetness. He looks at me. He fully accepts me as I am. He knows what love is And because of him I do, too. He brings to my life Focus. He points my life in new...
I Want: A Poem Prompt

I Want: A Poem Prompt

I WANT I WANT I WANT I SEEM TO BE BUT REALLY I AM OH, HOW I WANT………….!! This week, in July of 2009, I found this poem prompt among my files. I had filled it in at a grief support group in February of 2003 – five years after Lew’s death. I had even prepared it for the...
The Poem I Said I Would Never Write

The Poem I Said I Would Never Write

Every mother of a child who is disabled has at least one poem in her about her child, about the smile, the radiance, the beauty, the joy, the gifts, the focus, the new friends, the new purpose. And every mother of a child who is disabled has seen them all: they get...
Enough

Enough

I have a son who has severe physical and mental disabilities and whose life is worth living. It is worth enriching and cherishing. Someone asked me: “When do you know when you have done enough?” I wonder: Would he ask the same question about his own child? He implied,...